CFS LinksLinks
International Association for CFS/ME
http://www.aacfs.org/
The CFIDS Association of American
http://www.cfids.org
The National CFIDS Foundation, Inc.
http://www.ncf-net.org
The CDC's web page
http://www.cdc.gov/ncidod/diseases/cfs/
Directory of Services in Chicago
http://www.ahs.uic.edu/ahs/files/ot/bookler/CFS_Website/index.htm
Chicago area support group
P.O. Box 277
Wilmette, IL 60091
Voicemail: 312-409-5363
http://www.CFCCC.net
Contact: Carole Howard, President
Chronic Illness Initiative
DePaul University, School For New Learning
http://snl.depaul.edu/current/chronic.asp
R.E.D.D., or Rnase-L Enzyme Dysfunction Disease, is based on research
by Robert Suhadolnik. According to this theory, a low molecular
weight (LMW) 2'-5'A binding polypeptide (37kDa) is produced instead of
the normal 80kDa protein. It is possible that LMW RnaseL
functions as a strong binder for the RNA that the body produces to
fight viruses - and in fact it binds the RNA out of the process
altogether. The result is that the essential last stage in the body's
antiviral defense pathway is missing. To find out more, look at the
R.E.D.D. home page:
http://www.cfids-me.org/redd/
The CFIDS Association of America has released the first
public service announcement (PSA) on CFIDS for television,
featuring U.S. Surgeon General Dr. David Satcher. The PSA
emphasizes that CFS is a serious, complex disorder that can
affect people of all races and walks of life. Dr. Satcher
validates the illness, saying that "We may not know the cause
of [CFIDS], but the pain and suffering are real."
To view the 30-second PSA,
click here for WindowsMedia format:
http://wm1.radiotalk.com/tcc/cfids_wm/cfids4.wmv
CFIDS/Fibromyalgia Self-Help Program
Book: CFIDS/Fibromyalgia Toolkit
http://www.cfidsselfhelp.org
CFIDS & Fibromyalgia Health Resource
http://www.healthresource.com
Frequently asked questions on Social Security Disability
http://www.nosscr.org
Frank Albrecht's web site: "FOR PARENTS OF SICK AND WORN-OUT
KIDS"
http://home.bluecrab.org/~health/sickids.html
Website for CFIDS & Fibromyalgia Health Resouce
A good source of health information and high quality vitamins
and supplements
http://www.immunesupport.com
Leonard Jason's home page
http://condor.depaul.edu/~ljason
Fibromyalgia Websites
Fibromyalgia
F.A.C.E.S. INC. Firbromyalgia Association Created for Education and
Self-help,
a network of self-help groups in the Chicago metropolitan area:
send email to: fibrocop@hotmail.com or call Sabrina Johnson at
773-731-1228.
Fibromyalgia Network
http://www.fmnetnews.com
A national support organization for individuals with FMS that publishes
an informative newsletter.
Fibromyalgia Network News
http://www.FMNetNews.com
The National Fibromyalgia Awareness Campaign
http://fmaware.org
The Oregon Fibromyalgia Foundation.
http://www.Myalgia.com
The CF Alliance is a free, international pen
pal program for Chronic Fatigue Syndrome (CFS),
Myalgic Encephalomyelitis (ME)and Fibromyalgia (FM)
sufferers of all ages, as well as their families and
caregivers.
http://groups.yahoo.com/group/CFAlliance
Sleep problems
http://www.shuteye.com/solutions.asp
Sleepydust.net
Info About Post Viral Fatigue Syndrome, Chronic Fatigue Syndrome,
Myalgic Encephalopathy, Myalgic Encephalomyelitis, and Fibromyalgia:
Brainfog-friendly ME/CFS & FMS information: symptoms, diet,
therapies & treatments, medicines, ME/CFS &
Fibromyalgia-related news, book reviews and moreME/CFS site
http://www.sleepydust.net/
Multiple Chemical Sensitivities
Multiple Chemical Sensitivity Referral and Resources, Inc.
Provides outreach, resources for health care professionals, patient
support, and public advocacy.
508 Westgate Road
Baltimore, MD 21229-2343
Phone: 410-362-6400
Fax: 410-362-6401
Email: donnaya@rtk.net
The following companies offer catalogues and sell a variety of environmentally safe products for individuals with multiple chemical sensitivities and other allergic conditions, including nontoxic cleaning supplies, clothing, household paint, and air filters:
National Ecological and Environmental Delivery System (N.E.E.D.S.)
527 Charles Avenue, 12-A
Syracuse, NY 13209
Phone: 1-800-634-1380
Fax: 1-800-295-6333
Allergy Control Products, Inc.
96 Danbury Road
Ridgefield, CT 06877
Phone: 1-800-422-3878
Fax: 203-431-8963
Other Resources for Individuals with CFS, FMS, and MCS
Information about the Americans with Disabilities Act can be found
at:
U.S. Department of Justice
Civil Rights Division
Public Access Section
P.O. Box 65860
Washington, D.C. 20277-1806
Phone: 1-800-232-9675
National Information Center for Children and Youth with Disabilities
PO Box 1492
Washington, DC 20013
Phone: 202-884-8200
Food Stamps
Phone: 1-800-252-8635
Handicapped Parking Placard:
Phone: 1-800-252-8980
Social Security Administration:
Phone: 1-800-772-1213
Social Security Disability Hotline
Phone: 1-800-637-8856